Help raise awareness for EB or Epidermolysis Bullosa, a devastating and rare skin disease by clicking on the links in this post.
Hello Chris and Friends!
I’d love to take a moment to share a special journey with you.
I am working on my third children’s book, but this one has added meaning.
It’s a story that I hope will raise awareness about a rare skin disease called Epidermolysis Bullosa, or EB.
Children with this devastating condition have very fragile skin that blisters daily.
They are known as the butterfly children because their skin is as delicate as a butterfly’s wings.
I’ve written a story, called BUTTERFLY CHILD, to honor the bravery and strength I see in children with EB.
Now, I need your help to bring the book to life.
I’ve launched a Kickstarter campaign to get BUTTERFLY CHILD published.
By donating to the campaign supporters can receive different rewards like paperback and hardcover copies, or even get a child’s name written secretly in an illustration.
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